Today my son started off the morning, compliant with his morning round of treatments, but still whining a bit. He toddled off to middle school, where I am sure he had a wonderful day. He is still trying to find his way around the bigger pond, but am not sure he really cares about the pond.
So he returned home with a buddy, and spent the afternoon playing x-box, computer and pretty much hanging. This evening we went to dinner. His mom, sister, myself, his buddy and himself. He threw a fit about not wanting to go, but in the end had a good time. When we returned to the house it was time for his evening treatment. There was much "debate" about if the treatment was going to happen or not.
Much to my own chagrin, I ended up bending him over and spanking him like a toddler. He did his treatment all the while screaming at myself and his mother about how unfair life is and how he is not understood. I know most of this is pre-teen and the loss of control on his life since his diagnosis of CF 15 months ago, but it is tearing me apart having to be so strict and mean to the boy. He is going through a lot learning to deal with this new condition and restrictions on his life, but when lord, when is this going to end.
Right now he is wailing in anger. He purports to not believe in God, because if there was a God, why is this happening to him. Perhaps that is true, but I like to believe that while this genetic disorder is a cosmic joke on me, in reality it his life. Perhaps, just perhaps, he is the person to find the solution to this problem. Who knows, I sure don't!
On the lighter side, I had a great meal with my family.
So much for my life so far....
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