First things first. In 14 short days the University of Texas will be playing it's first football game at Reliant Stadium in Houston. Hooray, NCAA football is back at last!!!!
Second, nothing dramatic happened yesterday. Other than having to awaken my Son at 5:30 a.m. to take a benedryl so he could take his vancomycin at 6 a.m. While I do not like to hear the words "Daddy, I hate you" that early, it is a small price to pay for his continued good health.
I am going to rant a bit here. It has become increasingly hard to talk to people about my boy's Cystic Fibrosis. The fact is at 11, he stands a bit over 5'2" and weighs in at 115 lbs. He is very much the picture of health. He runs and plays with the rest, and had it not been for the sweat test in February we would not know he is ill. That said, he has the number one life shortening genetic disorder in the U.S. Yes, I know he looks well, but lets face it, he is ill, just look at his daily routine and try to understand.
In February of this year our daily routine was to get up in the morning and go to school. We arose at 6:50 to get dressed, eat and be walking out the door by 7:20. In August, when school starts our normal daily routine will become,
1. Awaken at 5:30
2. Shower/Shave and the third S.
3. Waken my Son at 6 a.m.
4. Put on the "Vest" for 30 minute treatment.
5. Nebulize 4 ml of Hypertonic Saline (20 minutes).
6. Get Dressed.
7. Eat Breakfast.
8. Take his morning Pills
a. One Probiotic
b. Asmanex
c. Any antibiotic that he may be on.
9. Nasal Wash/Sinus Rinse
10. Flonase.
Walk to School. His 30 minute mornings turned into 1 1/2 of regimented fun times. While he does not look sick and right now he does not have a cold or flu, please remember he has a genetic disorder that requires daily routines that eat up 3 hours of his day, and he has a "mild" case.
Okay, I am putting the soap box back under the bed and returning to my regular program.
Thanks for listening out there in the either.
No comments:
Post a Comment